Data Protection Promise

We, Family Fund, operate this website, the home page of which can be found at This page is for any member of the public who has dealings with The Family Fund Trust for Families with Severely Disabled Children (Family Fund), which results in Family Fund holding personal information about you. It sets out the standards you can expect when we ask for, or hold, your personal information, and what we ask of you to help us keep information up to date.

If you have already received other forms of assistance from us which have required you to agree to our Terms and Conditions and Data Protection Statement then they still apply. This document further clarifies the standards you can expect from any service, including information, advice or guidance, that we provide.

Our legal status and contact details

The Family Fund Trust for Families with Severely Disabled Children is a registered Data Controller with the Information Commissioner and is committed to ensuring that all personal information held is treated properly and in accordance with the Data Protection Act 1998 ('the Act').  

The Family Fund Trust for Families with Severely Disabled Children is a charity registered in England under registered charity no. 1053866, Scottish Charity no. SC040810 and a company limited by guarantee in England under registered company no 3166627. Our registered office and address for correspondence is Unit 4, Alpha Court, Monks Cross Drive, Huntington, York, North Yorkshire, United Kingdom, YO32 9WN. We are a Data Controller under the Act in respect of the personal information to which this document applies. We have notified the Information Commissioner of our data processing activities and our registration number is Z5314842.

How we use your information

When we ask you for personal information, we promise to:

  • make sure you know why we need it
  • ask only for what we need
  • not collect too much or irrelevant information
  • protect it and make sure nobody has access to it who should not.

We, or an organisation working with Family Fund, may wish to contact you in future to find out what you thought of the service you received, or for research purposes. This helps us to improve the service for others. In order to do this, we will ask for your permission to transfer your details for this purpose. If you do not wish to participate, you can state that you do not wish to be contacted. Whichever option you choose will not alter the service and advice you receive.

If you give consent when asked, you are agreeing that Family Fund may:

  • refer you to other advice providers
  • make appointments on your behalf with advice providers
  • share your personal information with other advice providers so that they have initial information about you and your situation
  • share your personal information with another organisation or another part of Family Fund Group so they can contact you about your experience of using Family Fund services

·         share your personal information with another organisation or another part of Family Fund Group for research purposes. Where additional information is required to complete a research study either Family Fund may contact you or the research organisation may contact you on our behalf.

We will ensure that if your information is shared with another organisation, this is only done with your permission. We will use the ICO Data Sharing Code of Practice when we share information to ensure the other organisation treats your information with the same level of care and security as us.

We do not sell personal information about families, service users or correspondents to any organisations.

We provide training to staff who handle personal information and respond appropriately if personal information is not used or protected properly

In return, we ask you to give us accurate information and tell us as soon as possible if anything changes, which may affect the information we hold.

We will also:

  • provide the public with up to date, relevant information on Family Fund websites to help solve their problems
  • write or commission research and publish evidence reports based on our social policy work
  • provide summaries of our completed work on our website together with more performance data in our annual report
  • strive to maintain our aims, principles, and standards of good administration.

Any published research or reports you have contributed to that contain general information on trends and/or issues faced by you will not identify you unless you have given your express consent.

We may disclose information about you to, and obtain information about you from, Government departments and agencies, debt collection agencies and tracing agencies to assist in the detection and prevention of fraud. Please contact us if you wish to know more about our fraud detection and prevention policy.

If you are unhappy with how we hold your data, you can contact us or follow our complaints procedure. You can ask that such information is no longer used as set out in this document by writing to our address for correspondence at the beginning of this document with details of your request.

Please note that, where we have signposted or referred you to any other organisation for information, advice or support, then those organisations will be the Data Controller and assume corresponding responsibilities as defined by the Data Protection Act 1998 for any new personal information that you have disclosed to them or that has been shared with them about you, This means, if you have any queries about the use of that information, you should contact those organisations directly.